Thursday, January 22, 2009

On the Road with Autism

I took an incredibly inspiring, one-day clinic at ASF all about autism. I learned about Temple Grandin www.grandin.com, a woman with autism who earned a Ph. D. and designs cattle facilities! With understanding and supportive family and friends she has been able to harness her ability to think and perceive differently to become a leading world expert at designing humane slaughter facilities for animals. Also she has been able to give us more insight into what it feels like to be autistic. We watched a hilarious video at www.ontheroadwithautism.com about two families that packed their autistic kids in a Humvee and go on the road. Normally it is hard to take autistic kids out to do fun things in the world because other people will judge them and the parents for any unusual behavior. But they just decided to do it anyway! Very inspiring. On the side of the Humvee they painted, “Fight Autism, not War!” I think you can get T-shirts with the slogan also. It mostly shows their trip to learn to ski at an adaptive sports center in California. Watch the video to get a taste of life here at ASF.

We also went out on snow and role-played working with autistic kids. I was partnered with Larry, a parent of an autistic racer at ASF, and he helped me to understand the kinds of games he uses to keep his son focused while riding the chairlift and how to break up instructions into bite size pieces. I learned “First-Then” techniques with rewards. When he role-played the student and I had to be the teacher, he made the whole experience seem so realistic.

Wednesday, January 14, 2009

ASF: Greatest Place on Earth

I am very excited about this winter in Windham with the Adaptive Sports Program. It is my second winter as a volunteer. Since I competed on the US Paralympic ski team in 1984, I get to help with the race team. It brings back so many memories of my own training and all of the people who helped me to reach for my dreams.

When I went to the volunteer orientation back in November, it felt great to be welcomed back for another year with familiar faces, hear all the latest news, get more helpful tips and gear up for the new season. ASF gives you lots of support and education as a volunteer. Basically I feel like a part of one big family in our snug little lodge with the warm fireplace apart from the big, public lodge down the hill. ASF is a place where everyone is accepted and valued for what they can do, not what they can’t do. I LOVE being able to look around and see people in wheelchairs, people with cognitive disabilities and people missing arms and legs sitting on sofas, walking across the room to get their equipment or lift tickets, and mingling with volunteers, staff, families, and friends. No one is staring or shocked by anything we do. Everyone is helpful, kind and loving. Sound like heaven? It is!

I have a confession: I don’t really think the disabled people are the oddest people at ASF. Lots of the people who come to help (including me) are real characters. Lots of personality! Also big differences of rich and not rich, black and white, East and West, city and rural, Democrat and Republican. So it isn’t just our disabilities that need acceptance and kindness—we need it for our eccentricities, our differences, and our uniqueness. At ASF I always feel like I have landed in a little utopia—full of people getting along and caring about one another the way it should be everywhere.

Monday, December 1, 2008

Letting Go of DeFeet

There were hardly any kids at the Shriners Hospital today... The administrative assistant I contacted had tried to discourage me from coming because the hospital would be so empty. But I came anyway, because I was in town. I wore my Olympic medals and brought souvenir postcards to sign for the patients who were there. So I visited a few kids and talked. Then we met this little girl with her mother in the hallway. Neither spoke English. Through the translator I shared the story of my amputated leg and being at Shriners for my surgeries when I was a kid. Then the girl lifted up her pants leg to show her foot was five inches off the ground with a brace like mine was. It turns out she had the same problem, but refused to let them cut her foot off. We talked a bit more. Then I visited some other kids. I saw her again and asked "is getting a leg like mine an option?" She shook her head quickly as if to say "no way" "Do you have any questions about it?" She shook her head faster. I wasn't getting through at all. So I put down my purse, took off my high heels, adjusted my ankle to flat and ran across the room and back as fast as I could. Then I took out my jump rope and jumped. I didn't see her face while I was running but they told me they saw the light in her eyes go on! A man who had seen her when she first came in--shy and withdrawn--started crying. If she was the only kid in the hospital that day, I think it was worth going.

When I spoke at the church later that day I told the story of the little girl...and I said, "Here she is in the middle of free, state of the art medical care turning down the treatment she needs--and a powerful new leg--because she wants to keep a foot that doesn't work!" "How often are we like that with God? God has everything prepared for us but we are like a small child from a foreign country who doesn't understand the big picture. What is the foot you are holding onto in your life that is blocking your blessings? Is it a job you need to move on from? Is it a relationship that you need to let go of? A degree you are afraid to get? What are you holding onto?"